Andrew McFadyenExecutive Director
The Isaac Foundation
Andrew McFadyen at The Isaac Foundation will always strive to work with families as they cope with dealing with and treating MPS. He works in the best interest of the children we are advocating for, and will work tirelessly to fundraise, raise awareness, and fund innovative research projects that aim to find a cure for the disease.Equal Access for Rare Disorders works with Federal and Provincial governments to ensure fair and equitable access to the health care system and life-saving treatments for Canadians suffering from rare diseases.
Andrew McFadyen is the Executive Director for The Isaac Foundation, a non-profit organization he founded to fund innovative research projects that aim to find a cure for MPS, a rare and progressive disease affecting his eldest son.
Andrew has led numerous advocacy efforts and helped to shape public policy throughout Canada with respect to availability of treatments for children dying from rare diseases. He has led efforts in Canada to revolutionize how they best implement a healthcare system that works for those with rare disorders, coordinating closely with governments, researchers, clinicians and industry. In 2013, McFadyen created a second non-profit corporation called Equal Access for Rare Disorders and has continued work fighting for fair and equitable access to treatments for children affected by rare diseases throughout Canada and the United States.
He lives in Campbellford, Ontario with his wife Ellen, and their two children, Isaac and Gabriel.